I'm new on HP and would love your help
Hi, I wonder if there is anyone out there who has heard of the disease Congenital Arteriovenious Malformation (AVM) of the Spine? I have it and was paralysed in Feb 02 because of it. I was told by my specialists that no-one else has it because it is purely of the spine and also because I was born with it but it didn't rear its very ugly head until I was 35.
I am so poorly with it, I can't go out, I am on more drugs than you can think of, I'm also in constant pain and under a mental health care team because I had a breakdown in 01 after I found out I had the disease, then my father died, then my husband told me he didn't love me anymore which meant I had to move out. Then finally after being paralysed and having my bowels taken out I was told by my work place that I was not well enough to work there because my memory isn't good enough. Fourteen years of hard work meant nothing so now I sit here alone, in pain and very unhappy. Not only do I have the above but I've also got osteoarthritis of my left hip, a heart problem, chest problems and at the moment I'm going through loads of tests to see how they can help me with my bladder because it just isn't working properly anymore.
I used to be so fit, running, swimming and biking but now I just sit around. I'm an ex-anorexic so worry that I'm fat all of the time even though I'm under 9stone and 5ft 8ins. I was good for a while and put on two stone to get to this weight but now I think I look disgusting and want to go back to my old weight of 6stone.
I don't know what to do anymore, I'm at the end of my tether. I have no-one to talk to and feel like I'm a leper. All my friends and family deserted me with the exceptions of a few very special people who saw through the wheels and disabilities. The main trouble is that they all live far away from me. Plus I understand that people have their own lives and don't want to intrude. It really does sound like I'm moaning about nothing, doesn't it? But I am finding it difficult to cope with.
Has anyone got any ideas on how I can deal with all of this? I would appreciate any help.
Thanks for reading.
[sm=banghead.gif]
Answers:
HI Alyson
Just read your thread, so sorry to see you have gone through such a terrible time... And the worst part, that your family and friends deserted you in your time of need! Shocking! At least you know hwo your real friends are now.
Just wanted to say I don't have any suggestions for you, I'm sorry to see you havent had any replies yet but I am sure there will be someone on here who will be able to help you. But I am here if you just want to talk. You are in my thoughts and I am sending you lotsa of light, love, hugz and strength.
Much Love
Leigh
I am so poorly with it, I can't go out, I am on more drugs than you can think of, I'm also in constant pain and under a mental health care team because I had a breakdown in 01 after I found out I had the disease, then my father died, then my husband told me he didn't love me anymore which meant I had to move out. Then finally after being paralysed and having my bowels taken out I was told by my work place that I was not well enough to work there because my memory isn't good enough. Fourteen years of hard work meant nothing so now I sit here alone, in pain and very unhappy. Not only do I have the above but I've also got osteoarthritis of my left hip, a heart problem, chest problems and at the moment I'm going through loads of tests to see how they can help me with my bladder because it just isn't working properly anymore.
I used to be so fit, running, swimming and biking but now I just sit around. I'm an ex-anorexic so worry that I'm fat all of the time even though I'm under 9stone and 5ft 8ins. I was good for a while and put on two stone to get to this weight but now I think I look disgusting and want to go back to my old weight of 6stone.
I don't know what to do anymore, I'm at the end of my tether. I have no-one to talk to and feel like I'm a leper. All my friends and family deserted me with the exceptions of a few very special people who saw through the wheels and disabilities. The main trouble is that they all live far away from me. Plus I understand that people have their own lives and don't want to intrude. It really does sound like I'm moaning about nothing, doesn't it? But I am finding it difficult to cope with.
Has anyone got any ideas on how I can deal with all of this? I would appreciate any help.
Thanks for reading.
[sm=banghead.gif]
Answers:
HI Alyson
Just read your thread, so sorry to see you have gone through such a terrible time... And the worst part, that your family and friends deserted you in your time of need! Shocking! At least you know hwo your real friends are now.
Just wanted to say I don't have any suggestions for you, I'm sorry to see you havent had any replies yet but I am sure there will be someone on here who will be able to help you. But I am here if you just want to talk. You are in my thoughts and I am sending you lotsa of light, love, hugz and strength.
Much Love
Leigh