Child has no thyroid gland, refuses test,help - Page 2
Thanks everyone for your helpful suggestions. The parents finally got the Dr. to prescribe another 30 days, so we bought some time, which is helpful especially over the holidays. Still the 30 days will go fast and we have to have the answer by then.
Your suggestions are wonderful and encouraging for the parents, my son and his wife.
Keep them coming if you think of anything. Thanks again, Sivad
Answers:
i guess i don't quite understand the actual reason for her behavior.considering that she seems to be normal in every other way,what has she stated the actual problem is exactly?My son has had to have constant blood draws for over six years now which started when he was in liver failure(at that time he was needing then three times a week)now,luckily,he is at once a month.but he just 'knows" that no matter what,this HAS to be done,no ifs ands or buts.does she fear the pain or does she just totally freak out as soon as she sees the needle?What i am trying to actually find out here is how she reacts and at what point does this occur.i mean is this a total out of control 'mental"type of issue?does she actually get in the car okay knowing that she is going to need this blood draw and she is very much aware and actually 'tries to be able to sit there but just cannot?just wondering as this could be two seperate issues.Is this a rebeliuos type of behavior where she is trying to maintain control or can she just not help it?i guess that is the real question i have.as one would be deliberate and the other much more of a psycological response.If she just has a simple fear of pain type of thing there are ways to numb the area with the EMLA cream or lidocaine patches.also,and this really makes a HUGE difference do they use the butterfly or a regular syringe for the draw.I can tell you just frommy own experience and my sons that the butterfly is much much less painful than the actual syringe stick,honestly a huge difference in the pain you will experience.It is just not quite as 'harsh"feeling.this is the ONLY way my son and now myself,will consent to having our blood drwn.if they are not usingthis,they really do need to switch.If she is actually rebelling and this is not a mental issue,she needs to come to grips with this as just part of her life in anyway that you feel is the way to go,whether it is severe punishment or loss of a big privledge,whatever.but she has to know that she does not have any control over this at all.it is not a choice,it HAS to and WILL be done,one way or another.this really IS quite the over the top type of reaction.I mean my son has never liked it,but unfortunetly he has absolutely no choice in the matter at all,it just IS part of his life forever.if this is more of a mental type of reaction that she just cannot help(which does not sound like it is the case?) you may have to go with some level of sedation.only you really know for sure here just what type of a reaction this is,either rebellion or mental health related.whichever it is,will really dictate which way to go.but at any rate,try the butterfly if you are not having it done already,it REALLY does take at least some of the more intense pain out of the picture.good luck,Marcia
Answers:
Thanks for the post Feelbad. My understanding is she really tries and then at the very time of the actual draw just panics and fights. Another observation, all of the girls her age have their ears pierced, Not Her, she will not, and says she never will. I personally think it is needle panic. I am not a professional, just her grandmother, who is really worried about her. She had valium at the last visit and sat an hour waiting for it to help. Her Dad said she was nervous, but waited and tried, only to fail again. Her parents are reading the posts and I am so grateful to all the concerned parents who have shared their ideas. Sivad
Answers:
I sure can relate to what you aregoing through. It's not an easy situation for anyone involved. I have a now 13 year old son who was born with a rare disease and he has to have some pretty major labwork done at least every 6 months. It has taken him many years to learn and accept that he has a choice. He can either sit there and have it done and be over with it in one minute or be hospitalized and then he'll have to not only get the same blood draws but deal with I.V's and people poking at him all the time. It was his choice.
It certainly didn't happen overnight but he gott to a point where he now sits there, can even laugh and talk while having it done, knowing that it will be over in no time and that he really won't even fell it! We always use Emla cream. It is a thick white pasty cream used to numb the area before kids get labwork. It's great stuff. It is only available by prescription but your docs office can apply it before the labs are done. It takes about 15 to numb the area. Good luck to all of you.
Answers:
I can understand completely the fear of needs not for myself but my husband and both boys are afraid of needles my husband is because when he was 5 and had a vaccine he tensed up so much he actually broke the needle in his arm and this has freaked him out forever plus he is a hard stick for labs and they generally have to either poke him a lot which is painful or use a butterfly and he can't always seem to convince people of that because he has deceptive veins. My 9 yr old son isn't horribly afraid but very nervous due to a similar problem to my husband he actually bent a needle in his arm at 5 he has very stong muscles for a kid. My 11 year old son has had a lot of lab work and and other tests done for his medical problems different ones keep coming up since a baby and he has never tolerated them well he is afraid of the needle even with the emla cream and butterfly needle even though afterward he will say it wasn't so bad. I beleive it is an anxiety issue. I am not sure I guess on what advise to give you we do eventually get through it though eventually with him it is a lot of talking and hand holding sometimes holding the arm down and he has been know to tell nurses to get out of his room. He appologizes in the end but I think he is frustrated because we still don't really know what is going on.
Your suggestions are wonderful and encouraging for the parents, my son and his wife.
Keep them coming if you think of anything. Thanks again, Sivad
Answers:
i guess i don't quite understand the actual reason for her behavior.considering that she seems to be normal in every other way,what has she stated the actual problem is exactly?My son has had to have constant blood draws for over six years now which started when he was in liver failure(at that time he was needing then three times a week)now,luckily,he is at once a month.but he just 'knows" that no matter what,this HAS to be done,no ifs ands or buts.does she fear the pain or does she just totally freak out as soon as she sees the needle?What i am trying to actually find out here is how she reacts and at what point does this occur.i mean is this a total out of control 'mental"type of issue?does she actually get in the car okay knowing that she is going to need this blood draw and she is very much aware and actually 'tries to be able to sit there but just cannot?just wondering as this could be two seperate issues.Is this a rebeliuos type of behavior where she is trying to maintain control or can she just not help it?i guess that is the real question i have.as one would be deliberate and the other much more of a psycological response.If she just has a simple fear of pain type of thing there are ways to numb the area with the EMLA cream or lidocaine patches.also,and this really makes a HUGE difference do they use the butterfly or a regular syringe for the draw.I can tell you just frommy own experience and my sons that the butterfly is much much less painful than the actual syringe stick,honestly a huge difference in the pain you will experience.It is just not quite as 'harsh"feeling.this is the ONLY way my son and now myself,will consent to having our blood drwn.if they are not usingthis,they really do need to switch.If she is actually rebelling and this is not a mental issue,she needs to come to grips with this as just part of her life in anyway that you feel is the way to go,whether it is severe punishment or loss of a big privledge,whatever.but she has to know that she does not have any control over this at all.it is not a choice,it HAS to and WILL be done,one way or another.this really IS quite the over the top type of reaction.I mean my son has never liked it,but unfortunetly he has absolutely no choice in the matter at all,it just IS part of his life forever.if this is more of a mental type of reaction that she just cannot help(which does not sound like it is the case?) you may have to go with some level of sedation.only you really know for sure here just what type of a reaction this is,either rebellion or mental health related.whichever it is,will really dictate which way to go.but at any rate,try the butterfly if you are not having it done already,it REALLY does take at least some of the more intense pain out of the picture.good luck,Marcia
Answers:
Thanks for the post Feelbad. My understanding is she really tries and then at the very time of the actual draw just panics and fights. Another observation, all of the girls her age have their ears pierced, Not Her, she will not, and says she never will. I personally think it is needle panic. I am not a professional, just her grandmother, who is really worried about her. She had valium at the last visit and sat an hour waiting for it to help. Her Dad said she was nervous, but waited and tried, only to fail again. Her parents are reading the posts and I am so grateful to all the concerned parents who have shared their ideas. Sivad
Answers:
I sure can relate to what you aregoing through. It's not an easy situation for anyone involved. I have a now 13 year old son who was born with a rare disease and he has to have some pretty major labwork done at least every 6 months. It has taken him many years to learn and accept that he has a choice. He can either sit there and have it done and be over with it in one minute or be hospitalized and then he'll have to not only get the same blood draws but deal with I.V's and people poking at him all the time. It was his choice.
It certainly didn't happen overnight but he gott to a point where he now sits there, can even laugh and talk while having it done, knowing that it will be over in no time and that he really won't even fell it! We always use Emla cream. It is a thick white pasty cream used to numb the area before kids get labwork. It's great stuff. It is only available by prescription but your docs office can apply it before the labs are done. It takes about 15 to numb the area. Good luck to all of you.
Answers:
I can understand completely the fear of needs not for myself but my husband and both boys are afraid of needles my husband is because when he was 5 and had a vaccine he tensed up so much he actually broke the needle in his arm and this has freaked him out forever plus he is a hard stick for labs and they generally have to either poke him a lot which is painful or use a butterfly and he can't always seem to convince people of that because he has deceptive veins. My 9 yr old son isn't horribly afraid but very nervous due to a similar problem to my husband he actually bent a needle in his arm at 5 he has very stong muscles for a kid. My 11 year old son has had a lot of lab work and and other tests done for his medical problems different ones keep coming up since a baby and he has never tolerated them well he is afraid of the needle even with the emla cream and butterfly needle even though afterward he will say it wasn't so bad. I beleive it is an anxiety issue. I am not sure I guess on what advise to give you we do eventually get through it though eventually with him it is a lot of talking and hand holding sometimes holding the arm down and he has been know to tell nurses to get out of his room. He appologizes in the end but I think he is frustrated because we still don't really know what is going on.